|
Name of
Organisation
|
The
Progressive Supranuclear Palsy(PSP) Association
|
Telephone
|
048 - 71358499 or 07587 130649
|
|
Name
Contact Person
|
Sandra
Campbell
|
Web-Site
|
www.pspeur.org
|
|
Address
|
167, Watling Street West,
Towcester,
Northamptonshire.NN12
6BX
|
E-Mail
|
Sandra.campbell@pspeur.org
|
|
|
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ABOUT US
|
|
Who are
you?
|
Sandra
Campbell
|
|
What is
your position?
|
Development
Officer Ireland
|
|
What is
your organisation/company?
|
The
Progressive Supranuclear Palsy Association
|
|
Where do
you operate geographically?
|
All Ireland – NI & Eire
|
|
What is
your Mission Statement?
|
The PSP
Association’s mission is to conquer PSP and CBD, progressive conditions which
gradually rob people of the ability to walk, talk, see and eat.
The charity’s objectives are to:
-
Promote and sponsor research worldwide into
the cause, treatment and eventual cure of Progressive Supranuclear Palsy
(PSP) and Cortico Basal Degeneration (CBD)
-
Support affected families across Europe
-
Provide information and raise awareness,
particularly among health and welfare professionals
|
|
What is
your organisation philosophy?
|
|
|
ABOUT OUR SERVICE
|
|
Describe
the type of service you deliver
|
Information
for families, therapists, education, awareness, advocacy & support.
|
|
Who are
your typical clients/service users?
|
50+ age
group. (Though PSP affects the over 40s, risk increases with age.)
|
|
What makes
your service different to that provided by others?
|
The only
organisation in Europe supporting people
with PSP, their families and their therapists.
|
|
What is
your specific expertise?
|
Education
/ training , advocacy & support
|
|
How long
are you involved in the sector?
|
15 years
|
|
How would
you like to interact with other providers in future (if applicable)?
|
Awareness
and education in the symptoms, care & support of people living with PSP.
|
|
Other
comments you wish to make
|
We welcome
any opportunity to speak about PSP, particularly to Health Service providers.
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